{"id":19654,"date":"2021-06-10T16:11:03","date_gmt":"2021-06-10T16:11:03","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19654"},"modified":"2025-08-23T17:14:22","modified_gmt":"2025-08-23T21:14:22","slug":"das-ecd-care-network-versorgt-nun-patienten-in-michigan","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/ecd-care-network-now-serves-michigan-patients\/","title":{"rendered":"Das ECD Care Network versorgt nun auch Patienten in Michigan"},"content":{"rendered":"

Die \u201eErdheim-Chester Disease Global Alliance\u201c ist stolz darauf, bekannt zu geben, dass das erste ECD-\u00dcberweisungszentrum in Michigan eingerichtet wird.<\/strong><\/p>\n

Die \u201eErdheim-Chester Disease Global Alliance\u201c (ECDGA) freut sich, den neuesten Neuzugang im Netzwerk der ECD-Referral-Care-Center vorstellen zu d\u00fcrfen:, Rogel Cancer Center der University of Michigan, <\/strong>Ann Arbor, Michigan. The lead physician at this center is Dr. Asra Ahmed who specializes in hematology-oncology. Having an Erdheim-Chester Disease (ECD) referral center located in this region will not only be beneficial to the 12 Michigan-based patients currently registered with ECDGA but also allow access for more patients seeking a possible ECD diagnosis in the future. Forming this partnership ensures collaboration, education, improving early diagnosis, providing effective treatments, and support for the ECD patients in this part of the country.<\/p>\n

\"\"<\/p>\n

\u201cDie Erdheim-Chester-Krankheit ist \u00e4u\u00dferst selten, weshalb es f\u00fcr Patienten von entscheidender Bedeutung ist, die richtige Fachkompetenz zu finden, um eine angemessene Behandlung sicherzustellen. Wir freuen uns, das einzige ECD-\u00dcberweisungszentrum in Michigan zu sein, und sehen der Koordinierung der Versorgung von Patienten im gesamten Bundesstaat und in der Region erwartungsvoll entgegen\u201d, sagt Dr. med. Asra Ahmed, Assistenzprofessorin f\u00fcr Innere Medizin an der Michigan Medicine, dem akademischen medizinischen Zentrum der University of Michigan.<\/p>\n

Die ECDGA erkennt weltweit 35 Kompetenzzentren an. Alle Einrichtungen sind verpflichtet, miteinander zu kommunizieren und zusammenzuarbeiten, um sicherzustellen, dass Patienten die aktuellsten Behandlungsm\u00f6glichkeiten und die bestm\u00f6gliche Versorgung erhalten. Ein weiterer wichtiger Aspekt des Netzwerks der ECD-\u00dcberweisungszentren besteht darin, sicherzustellen, dass die ECD-\u00c4rzte in diesen Zentren den Fall eines Patienten, der aufgrund seiner Erkrankung nicht reisen kann, mit dessen Hausarzt besprechen k\u00f6nnen.<\/p>\n

Weitere Informationen zum Netzwerk der ECD-Referral-Care-Center und zu den Kontaktm\u00f6glichkeiten finden Sie unter www.erdheim-chester.org\/care-centers\/<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

The Erdheim-Chester Disease Global Alliance is proud to announce the first ECD Referral Care Center to be located in Michigan Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to introduce the […]<\/p>\n","protected":false},"author":14,"featured_media":19655,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,115,101,83,54,59,53,58,56,69,57,116,82,52,114,113],"class_list":["post-19654","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-ann-arbor","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-patient-support","tag-rare-cancer","tag-rare-disease","tag-rogel-cancer-center","tag-university-of-michigan"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19654","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=19654"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19654\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/19655"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=19654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=19654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=19654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}