{"id":19549,"date":"2021-02-17T17:02:46","date_gmt":"2021-02-17T17:02:46","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19549"},"modified":"2026-08-19T07:08:41","modified_gmt":"2026-08-19T12:08:41","slug":"tag-der-seltenen-krankheiten-2023","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/2021-rare-disease-day\/","title":{"rendered":"Tag der seltenen Krankheiten 2021"},"content":{"rendered":"

Was ist der Tag der seltenen Krankheiten?<\/strong><\/h1>\n

28. Februar 2021<\/em>, \u2026 wird der 14. Internationale Tag der Seltenen Krankheiten sein, der von EURORDIS koordiniert wird. An diesem Tag und in den Tagen davor und danach werden Hunderte von Patientenorganisationen aus L\u00e4ndern und Regionen auf der ganzen Welt Aufkl\u00e4rungsaktionen durchf\u00fchren.<\/p>\n

Approximately 300 million people (about 5% of the population) suffer from a rare disease. Within that 5%, less than 1,000 people suffer from\u00a0Erdheim-Chester Disease worldwide.<\/p>\n

Schlie\u00dfen Sie sich der ECD Global Alliance an und tragen Sie dazu bei, das Bewusstsein f\u00fcr seltene Krankheiten zu st\u00e4rken, indem Sie Ihre Erfahrungen mit ECD teilen.<\/strong><\/p>\n

Offizielles Video zum Tag der seltenen Krankheiten\u00a0<\/a><\/p>\n

Find more resources and ways to raise awareness on our Sagt es weiter!<\/a> Webseite oder auf der Website zum Tag der seltenen Krankheiten<\/a>.<\/p>\n

Share your day with us on media, by tagging @ECDGA on Facebook and using #ECDawareness on any media site. We would appreciate it if you would also contact us to use your story, quote, photo, and\/or post on ECDGA’s media pages.<\/p>\n

Lesen Sie unseren neuesten Patientenbericht, der anl\u00e4sslich des diesj\u00e4hrigen Tages der seltenen Krankheiten ver\u00f6ffentlicht wurde: Eine spirituelle Reise durch die fr\u00fchkindliche Bildung<\/a><\/strong><\/p>\n

Teilen Sie diesen Flyer auf Ihren Social-Media-Seiten oder per E-Mail <\/strong>mit Ihren Kontakten!<\/strong><\/p>\n

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Was auch immer Sie an diesem Tag der seltenen Krankheiten unternehmen \u2013 Ihre Selbsthilfegruppe steht Ihnen auf Ihrem Weg zur Seite! Vielen Dank, dass Sie Ihre Schleife f\u00fcr seltene Krankheiten mit Stolz tragen!<\/strong><\/em><\/p>","protected":false},"excerpt":{"rendered":"

WHAT IS RARE DISEASE DAY? February 28, 2021, will be the 14th International Rare Disease Day coordinated by EURORDIS. On and around this day, hundreds of patient organizations from countries […]<\/p>\n","protected":false},"author":14,"featured_media":19553,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[55,101,83,54,59,53,58,56,69,57,82,52,75],"class_list":["post-19549","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-advocacy","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-rare-cancer","tag-rare-disease","tag-rare-disease-day"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19549","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=19549"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19549\/revisions"}],"predecessor-version":[{"id":175290,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19549\/revisions\/175290"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/19553"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=19549"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=19549"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=19549"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}