{"id":176046,"date":"2026-08-29T12:55:09","date_gmt":"2026-08-29T17:55:09","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=176046"},"modified":"2026-09-22T10:22:42","modified_gmt":"2026-09-22T15:22:42","slug":"niemand-muss-sich-allein-mit-ecd-auseinandersetzen","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/no-one-faces-ecd-alone\/","title":{"rendered":"Niemand muss sich allein mit ECD auseinandersetzen"},"content":{"rendered":"<p>Die Diagnose \u201eECD\u201c kann einen \u00fcberw\u00e4ltigen, vor allem, wenn es sich um eine Krankheit handelt, von der die meisten Menschen noch nie etwas geh\u00f6rt haben.<\/p>\n<p>Doch niemand muss den Weg durch die ECD allein gehen. Weltweit sind Patienten und Familien durch eine Gemeinschaft verbunden, die einander versteht, zuh\u00f6rt, Erfahrungen austauscht und sich gegenseitig unterst\u00fctzt.<\/p>\n<p><strong>Wo auch immer Sie sich befinden \u2013 die ECD Global Alliance ist f\u00fcr Sie da.<\/strong><\/p>\n<p><strong>Handeln Sie:<\/strong> Nehmen Sie noch heute Kontakt zu jemandem aus der ECD-Community auf. Schon eine einfache Nachricht kann jemandem zeigen, dass er nicht allein ist.<\/p>","protected":false},"excerpt":{"rendered":"<p>An ECD diagnosis can feel overwhelming, especially when the disease is something most people have never heard of. But no one has to navigate ECD alone. Around the world, patients [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":176047,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[375,378,387,2252,6154,376],"class_list":["post-176046","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdawareness","tag-ecdcommunity","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/176046","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=176046"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/176046\/revisions"}],"predecessor-version":[{"id":176079,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/176046\/revisions\/176079"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/176047"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=176046"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=176046"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=176046"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}