{"id":174479,"date":"2026-09-11T09:00:05","date_gmt":"2026-09-11T14:00:05","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174479"},"modified":"2026-09-11T16:49:12","modified_gmt":"2026-09-11T21:49:12","slug":"erfahrungsberichte-von-patienten-und-pflegekraften","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/patient-and-caregiver-stories\/","title":{"rendered":"Erfahrungsberichte von Patienten und Pflegepersonen"},"content":{"rendered":"<p>Hinter jeder ECD-Diagnose steckt eine Geschichte.<\/p>\n<p>Manche Geschichten beginnen mit jahrelangen unbeantworteten Fragen.<br \/>\nAndere wiederum zeichnen sich durch Widerstandsf\u00e4higkeit, Mut und Hoffnung aus.<\/p>\n<p>Heute w\u00fcrdigen wir jeden Patienten, jeden Pflegekraft und jede Familie, deren Weg uns daran erinnert, warum Aufkl\u00e4rung so wichtig ist.<\/p>\n<p>Wir w\u00fcrden uns sehr freuen, Ihre Geschichte zu h\u00f6ren. Wie lange hat es gedauert, bis bei Ihnen oder einem Ihnen nahestehenden Menschen die Diagnose ECD gestellt wurde? Teilen Sie Ihre Erfahrungen in den Kommentaren mit. Ihre Geschichte kann vielleicht dazu beitragen, dass sich jemand anderes weniger allein f\u00fchlt.<\/p>\n<p><strong>Gemeinsam machen wir das Seltene sichtbar.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Every ECD diagnosis has a story. Some stories begin with years of unanswered questions. Others are filled with resilience, courage, and hope. Today we honor every patient, every caregiver, and [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174480,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[6167,387,2252,6154,4558,376],"class_list":["post-174479","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-caregiversupport","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-patientstories","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/174479","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=174479"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/174479\/revisions"}],"predecessor-version":[{"id":174496,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/174479\/revisions\/174496"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/174480"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=174479"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=174479"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=174479"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}