{"id":174440,"date":"2026-09-05T09:00:42","date_gmt":"2026-09-05T14:00:42","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174440"},"modified":"2026-09-08T04:15:09","modified_gmt":"2026-09-08T09:15:09","slug":"der-weg-zur-diagnose","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/the-diagnostic-journey\/","title":{"rendered":"Der Weg zur Diagnose"},"content":{"rendered":"<p><strong>Ziggy wei\u00df\u2026<\/strong><\/p>\n<p>Menschen mit ECD verbringen Jahre damit, nach Antworten zu suchen. Untersuchungen haben gezeigt, dass es nach dem ersten Auftreten der Symptome durchschnittlich 4,2 Jahre dauert, bis die Diagnose ECD gestellt wird.<\/p>\n<p>Das Wissen \u00fcber ECD kann dazu beitragen, diesen Weg f\u00fcr zuk\u00fcnftige Patienten zu verk\u00fcrzen.<\/p>\n<p><strong>Eine fr\u00fchzeitige Erkennung kann einen entscheidenden Unterschied machen.<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy Knows&#8230; People with ECD spend years searching for answers. Research has shown that after symptoms first appear, it takes an average of 4.2 years to get an ECD diagnosis. [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174441,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6154,376,3844],"class_list":["post-174440","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease","tag-rarediseaseawareness"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/174440","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=174440"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/174440\/revisions"}],"predecessor-version":[{"id":174449,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/174440\/revisions\/174449"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/174441"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=174440"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=174440"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=174440"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}