{"id":110164,"date":"2025-12-16T09:17:23","date_gmt":"2025-12-16T15:17:23","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=110164"},"modified":"2025-12-31T09:18:30","modified_gmt":"2025-12-31T15:18:30","slug":"ziggy-das-zebra-spricht-daruber-wie-man-in-verbindung-bleibt","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/ziggy-the-zebra-talks-about-staying-connected\/","title":{"rendered":"Ziggy, das Zebra, spricht dar\u00fcber, wie man in Verbindung bleibt"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"Ziggy, das Zebra, spricht dar\u00fcber, wie man in Verbindung bleibt\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/v56aYI_LF28?feature=oembed\"  allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p class=\"p3\">We\u2019re excited to share a new animated short featuring Ziggy the Zebra, the ECD community\u2019s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.<\/p>\n<p class=\"p3\">These virtual gatherings provide a safe and welcoming space to discuss a wide range of topics related to Erdheim-Chester Disease, including diagnosis, treatment, symptoms, and quality of life. They also offer an opportunity for community members to build lasting relationships and find support through shared experiences.<\/p>\n<p class=\"p3\">Falls Sie sich noch nicht bei der ECD Global Alliance registriert haben, empfehlen wir Ihnen, dies unter www.erdheim-chester.org zu tun, um Benachrichtigungen \u00fcber bevorstehende Chats zu erhalten, die f\u00fcr Ihre Position relevant sind.<\/p>\n<p class=\"p3\">Sehen Sie sich das Video jetzt an und erfahren Sie, wie die ECD-Community weltweit durch Austausch, gegenseitige Unterst\u00fctzung und ein gemeinsames Verst\u00e4ndnis zusammenw\u00e4chst.<\/p>\n<p class=\"p1\"><b>Die Erdheim-Chester Disease Global Alliance (ECDGA) bietet keine medizinische Beratung, Diagnosen oder Behandlungen an. Alle Inhalte dienen ausschlie\u00dflich zu Informationszwecken. Bei medizinischen Fragen wenden Sie sich bitte an einen Arzt.<\/b><\/p>","protected":false},"excerpt":{"rendered":"<p>We\u2019re excited to share a new animated short featuring Ziggy the Zebra, the ECD community\u2019s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.<\/p>","protected":false},"author":14,"featured_media":110177,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-110164","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/110164","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=110164"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/110164\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/110177"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=110164"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=110164"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=110164"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}