{"id":106700,"date":"2025-11-05T10:00:39","date_gmt":"2025-11-05T16:00:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=106700"},"modified":"2025-11-05T11:11:41","modified_gmt":"2025-11-05T17:11:41","slug":"ecdga-at-the-2025-american-college-of-rheumatology-acr-annual-conference","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/ecdga-at-the-2025-american-college-of-rheumatology-acr-annual-conference\/","title":{"rendered":"Die ECDGA auf der Jahrestagung 2025 des American College of Rheumatology (ACR)"},"content":{"rendered":"<p>Last week, <strong>ECDGA President Diane Schriner<\/strong> und <strong>ECDGA Staff Member Jerome Henson<\/strong> represented the <strong>Erdheim-Chester Disease Global Alliance (ECDGA)<\/strong> at the <strong>American College of Rheumatology (ACR) Annual Conference<\/strong>, joined by <strong>Dr. Mitali Sen<\/strong>, a rheumatologist from the <strong>Universit\u00e4t von Alabama in Birmingham<\/strong>.<\/p>\n<p>Together, they are raising awareness about <strong>Erdheim-Chester-Krankheit (ECD)<\/strong> among rheumatologists, clinicians, and researchers from around the world. Through educational outreach, professional collaboration, and personal engagement, they are helping expand recognition of this rare disease and encouraging earlier diagnosis and improved care.<\/p>\n<p>The ACR Annual Conference brings together thousands of experts dedicated to advancing the understanding and treatment of rheumatologic and rare inflammatory conditions\u2014making it an ideal platform to highlight ECD and the importance of multidisciplinary collaboration.<\/p>\n<p>We\u2019re proud to have <strong>Diane, Jerome, and Dr. Sen<\/strong> representing the ECD community and helping ensure that Erdheim-Chester Disease continues to gain visibility within the medical field.<\/p>\n<p><strong>Thank you for your commitment to raising awareness and building connections on behalf of patients and families affected by ECD!<\/strong><\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-106803\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-106791\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-106779\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>ECDGA President Diane Schriner, staff member Jerome Henson, and Dr. Mitali Sen, rheumatologist from the University of Alabama at Birmingham, attended the American College of Rheumatology (ACR) Annual Conference to raise awareness about Erdheim-Chester Disease (ECD).<br \/>\nTheir efforts help ensure ECD is recognized by clinicians and researchers around the world. Thank you, Diane, Jerome, and Dr. Sen, for representing the ECDGA and our community!<\/p>","protected":false},"author":14,"featured_media":106701,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[5293,387,374,3292,3844,5294],"class_list":["post-106700","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-acr2025","tag-ecdga","tag-erdheimchesterdisease","tag-patientadvocacy","tag-rarediseaseawareness","tag-rheumatology"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/106700","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=106700"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/106700\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/106701"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=106700"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=106700"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=106700"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}