{"id":102345,"date":"2018-05-16T19:44:54","date_gmt":"2018-05-17T00:44:54","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6-jaehrliches-internationales-ecd-patienten-und-familientreffen-orlando-fl\/"},"modified":"2026-05-25T10:22:59","modified_gmt":"2026-05-25T15:22:59","slug":"6-jaehrliches-internationales-ecd-patienten-und-familientreffen-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/6-jaehrliches-internationales-ecd-patienten-und-familientreffen-orlando-fl\/","title":{"rendered":"6. j\u00e4hrliches ECD-Patienten- und Familientreffen Orlando, FL"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” hover_enabled=”0″ global_colors_info=”{}” _dynamic_attributes=”title” sticky_enabled=”0″][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_text=”Julio Hajdenberg, MD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Orlando Health” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”16. November 2018″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/12\/All-Attendee-Group-Photo-2.jpg” title_text=”Gruppenfoto aller Teilnehmer 2″ align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.6″ _module_preset=”default” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}”]<\/p>\n

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Internationales ECD-Patienten- und Familientreffen Orlando \u2013 Gruppenfoto 2018<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Zusammenfassung des Patienten- und Familientreffens<\/h2>\n

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Insgesamt 109 Patienten, Familienmitglieder und \u00c4rzte aus acht L\u00e4ndern nahmen am Patienten- und Familientreffen 2018 teil.<\/p>\n

Die Teilnehmer erfuhren mehr \u00fcber den Prozess der Arzneimittelpr\u00fcfung, den Umgang mit mehreren Medikamenten, die richtige Ern\u00e4hrung und k\u00f6rperliche Bet\u00e4tigung und mehr \u00fcber das Pflegemanagement. Weitere Informationen zu dieser erfolgreichen Veranstaltung finden Sie in den unten stehenden Materialien. Vielen Dank an alle Teilnehmer! <\/p>\n

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Fotografien<\/h2>\n

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Fotos des Empfangs<\/h3>\n

Die folgenden Fotos wurden w\u00e4hrend des ECD Patient & Family Gathering Reception mit medizinischen Fachkr\u00e4ften und ECD Familien am 15. November 2018 im Orlando Health Regional Medical Center aufgenommen. Vielen Dank an alle Teilnehmer f\u00fcr ihre Teilnahme und ihr Engagement f\u00fcr die Gemeinschaft. Weitere Fotos finden Sie auf Facebook unter dem Suchbegriff #ECDGA18 oder direkt auf unserer ECDGA Facebook-Seite<\/a>. <\/p>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”35540,35552,35564,35576,35588,35600,35612,35624,35636,35648,35660,35672,35684,35696,35708,35720,35732,35744,35756,35768,35780,35792,35804,35816,35828,35840,35852,35864,35876,35888,35900,35912,35924,35936,35948,35960,35972″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.1.1″ db_image_object_fit=”cover” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_gallery][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||20px||false|false” global_colors_info=”{}”]<\/p>\n

Fotos vom Patiententreffen<\/h3>\n

Die folgenden Fotos wurden w\u00e4hrend des ECD Patienten- und Familientreffens am 16. November 2018 im Orlando Health – Orlando Regional Medical Center aufgenommen. Vielen Dank an alle Teilnehmer f\u00fcr die Teilnahme an dem Treffen und die geselligen Stunden, die eine gro\u00dfartige Unterst\u00fctzung und Verbindungen innerhalb dieser Gemeinschaft erm\u00f6glicht haben. Weitere Fotos finden Sie auf Facebook unter dem Suchbegriff #ECDGA18 oder direkt auf unserer ECDGA Facebook-Seite<\/a>. Bitte kommen Sie am 12. Juli 2019 wieder nach Mailand, Italien! <\/p>\n

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Internationales ECD-Patienten- und Familientreffen Orlando \u2013 Gruppenfoto 2018 Zusammenfassung des Patienten- und FamilientreffensInsgesamt 109 Patienten, Familienmitglieder und \u00c4rzte aus acht L\u00e4ndern nahmen am Patienten- und Familientreffen 2018 teil. Die Teilnehmer […]<\/p>\n","protected":false},"author":20,"featured_media":77367,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4859],"tags":[],"class_list":["post-102345","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-treffen-von-patienten-und-familien"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102345","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=102345"}],"version-history":[{"count":23,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102345\/revisions"}],"predecessor-version":[{"id":133578,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102345\/revisions\/133578"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/77367"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=102345"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=102345"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=102345"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}