{"id":102210,"date":"2019-04-01T18:26:07","date_gmt":"2019-04-01T23:26:07","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/7-jaehrliches-ecd-medizinisches-symposium-mailand-italien\/"},"modified":"2026-07-07T11:38:03","modified_gmt":"2026-07-07T16:38:03","slug":"7-jaehrliches-ecd-medizinisches-symposium-mailand-italien","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/7-jaehrliches-ecd-medizinisches-symposium-mailand-italien\/","title":{"rendered":"7. j\u00e4hrliches ECD Medizinisches Symposium Mailand, Italien"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”7. j\u00e4hrliches ECD Medizinisches Symposium Mailand, Italien” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_text=”Lorenzo Dagna, MD” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”San Raffaele Institut” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Mailand, Italien” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”1. April 2019″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/7th-Annual-ECD-Medical-Symposium-Milan-Italy.jpeg” title_text=”7. j\u00e4hrliches ECD Medizinisches Symposium Mailand, Italien” align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.7″ _module_preset=”default” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}”]<\/p>\n

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Gruppenbild des Medizinischen Symposiums Mailand 2019<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Symposium Zusammenfassung<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]Rund 38 medizinische Fachkr\u00e4fte aus neun L\u00e4ndern nahmen 2019 am j\u00e4hrlichen ECD Medical Symposium teil. Zw\u00f6lf m\u00fcndliche Abstracts wurden pr\u00e4sentiert, zus\u00e4tzlich vier Posterpr\u00e4sentationen. Als eingeladener Redner hielt Prof. Luigi Naldini einen Vortrag mit dem Titel \u201eGenetische Entwicklung der H\u00e4matopoese zur Behandlung von <\/p>\n

erblichen Erkrankungen und Krebs.\u201c Ein abendlicher Empfang bot Zeit f\u00fcr Diskussionen, die aktuelle und zuk\u00fcnftige Kooperationen innerhalb dieser hochkompetenten Gruppe von \u00c4rztinnen und \u00c4rzten sowie Wissenschaftlerinnen und Wissenschaftlern unterst\u00fctzten, die alle daran interessiert waren, mehr \u00fcber die Erdheim-Chester-Krankheit zu erfahren.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Erfahrungen der Teilnehmer<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

\u201eDie ECDGA stellt wichtige Ressourcen<\/a> f\u00fcr meine Patienten bereit, die zu einer schnelleren Diagnose<\/a> gef\u00fchrt haben. Zudem bietet sie Patienten mit einer seltenen Erkrankung eine Gemeinschaft, in der sie sich weniger allein f\u00fchlen.\u201c <\/em><\/p>\n

\u2013 Mark Heaney, MD, Teilnehmer 2019<\/strong><\/p>\n

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Programme mit Symposium Agenda<\/h2>\n

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Pr\u00e4sentationen<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Jithma P. Abeykoon, MD<\/td>Histopathologic Mimics of Erdheim-Chester Disease<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Benjamin H. Durham<\/td>Novel Alterations in CSF1R, RET, and Other Diverse Kinases in the Histiocytoses with Biochemical and Structural Insights into Their Mechanisms of Activation<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Marina Ferrarini, MD<\/td>Novel Alterations in CSF1R, RET, and Other Diverse Kinases in the Histiocytoses with Biochemical and Structural Insights into Their Mechanisms of Activation<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>MEK inhibition with trametinib in patients with non-Langerhans cell histiocytosis irrespective of BRAF mutation status<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Francesco Pegoraro, MD<\/td>Erdheim-Chester with multiple lesions related to BRAF V600E mutation. A simple coincidence?<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>PD-1\/PD-L1 expression is frequent and correlates with inflammation in Erdheim-Chester disease<\/td>No Videos available<\/td>\n<\/tr>\n
Rikhia Chakraborty, MD<\/td>Targeted inhibition of the MAPK pathway in combination with immune checkpoint inhibitors restores immune dysfunction ex vivo and reduces disease burden in a mouse model of Langerhans cell histiocytosis<\/td>No Videos available<\/td>\n<\/tr>\n
Simonetta Gerevini, MD<\/td>CNS imaging in ECD Workshop<\/td>No Videos available<\/td>\n<\/tr>\n
Claudio Doglioni, MD<\/td>State of the Art of ECD Pathology Workshop<\/td>No Videos available<\/td>\n<\/tr>\n
Antonio Esposito, MD<\/td>Cardiac Imaging in ECD Workshop<\/td>No Videos available<\/td>\n<\/tr>\n
Kazuhiro Toyama, MD<\/td>Prognostic factors of Erdheim\u2013Chester Disease: A nationwide survey in Japan<\/td>No Videos available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Phase 2 Trial of Cobimetinib for Adults with Histiocytosis: Results in BRAFV600-wildtype and BRAFV600E-mutated patients<\/td>No Videos available<\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Diagnostic & Therapeutic Challenges of Mixed Histiocytosis in the Era of Precision Medicine<\/td>No Videos available<\/td>\n<\/tr>\n
Kathy Brewer and Lorenzo Dagna, MD<\/td>Closing<\/a><\/td>No Videos available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Fotografien<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||0px||false|false” global_colors_info=”{}”]<\/p>\n

Empfang<\/h3>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”32025,32577,32553,32541,32529,32517,32505,32493,32481,32469,32457,32445,32433,32421,32409,32397,32385,32373,32361,32349,32337,32325,32313,32301,32289,32277,32265,32253,32241,32229,32217,32205,32193,32181,32169,32157,32145,32133,32121,32109,32097,32085,32073,32061,32049,32037″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.5″ db_image_object_fit=”cover” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_gallery][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Gruppenbild des Medizinischen Symposiums Mailand 2019 Symposium ZusammenfassungRund 38 medizinische Fachkr\u00e4fte aus neun L\u00e4ndern nahmen 2019 am j\u00e4hrlichen ECD Medical Symposium teil. Zw\u00f6lf m\u00fcndliche Abstracts wurden pr\u00e4sentiert, zus\u00e4tzlich vier Posterpr\u00e4sentationen. […]<\/p>\n","protected":false},"author":20,"featured_media":172878,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"\"<\/a>Location:<\/strong> Milan, Italy\r\n\r\n\"ECDGA provides important resources for my patients that has led to faster diagnosis. It also provides a community for patients with a rare disease to feel less alone.\" -\u00a0<\/em>Mark Heaney, MD, 2019 Attendee\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n

Presentations<\/h4>\r\n[table id=25 \/]\r\n

Reception Photos<\/h4>\r\n[gallery columns=\"4\" size=\"full\" ids=\"32021,32033,32045,32057,32069,32081,32093,32105,32117,32129,32141,32153,32165,32177,32189,32201,32213,32225,32237,32249,32261,32273,32285,32297,32309,32321,32333,32345,32357,32369,32381,32393,32405,32417,32429,32441,32453,32465,32477,32489,32501,32513,32525,32537,32549,32561,32573\"]","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4822],"tags":[],"class_list":["post-102210","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medizinisches-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102210","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=102210"}],"version-history":[{"count":35,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102210\/revisions"}],"predecessor-version":[{"id":173072,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102210\/revisions\/173072"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/172878"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=102210"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=102210"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=102210"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}