{"id":102057,"date":"2018-04-01T18:10:48","date_gmt":"2018-04-01T23:10:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6-jaehrliches-ecd-medizinisches-symposium-orlando-fl\/"},"modified":"2026-06-12T09:26:01","modified_gmt":"2026-06-12T14:26:01","slug":"6-jaehrliches-ecd-medizinisches-symposium-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/6-jaehrliches-ecd-medizinisches-symposium-orlando-fl\/","title":{"rendered":"6. j\u00e4hrliches ECD Medizinisches Symposium Orlando, FL"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”6. j\u00e4hrliches ECD Medizinisches Symposium Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Xavier Solanich, MD, PHD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Orlando Regional Medical Center” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”1. April 2018″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2018-MS-Orlando.jpg” title_text=”2018 Medizinisches Symposium Orlando” align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

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Gruppenbild des Orlando Medizinischen Symposiums 2018<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Symposium Zusammenfassung<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Am j\u00e4hrlichen ECD Medical Symposium 2018 nahmen etwa 44 medizinische Fachkr\u00e4fte aus sechs L\u00e4ndern teil. Zehn m\u00fcndliche Abstracts wurden pr\u00e4sentiert, zusammen mit weiteren sechs Posterpr\u00e4sentationen. Als eingeladener Redner hielt Matthew Collin einen Vortrag mit dem Titel \u201eErdheim-Chester Disease: Cancer, but not as we know it.\u201c Ein Abendempfang bot Zeit f\u00fcr Diskussionen zur Unterst\u00fctzung aktueller und zuk\u00fcnftiger Kooperationen innerhalb dieser \u00e4u\u00dferst sachkundigen Gruppe von \u00c4rztinnen und \u00c4rzten sowie Wissenschaftlerinnen und Wissenschaftlern, die alle daran interessiert waren, mehr \u00fcber Erdheim-Chester Disease zu erfahren. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Erfahrungen der Teilnehmer<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u201e[Die ECD Global Alliance] hat mir und meinen Patienten geholfen, indem sie Experten zusammengebracht hat, um gemeinsam Fortschritte zu erzielen.\u201c <\/em><\/p>\n

\u2013 Ronald S. Go, MD, Teilnehmer 2018<\/strong><\/p>\n

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Programme mit Symposium Agenda<\/h2>\n

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Pr\u00e4sentationen<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Julio Hajdenberg, MD<\/td>Welcome Address<\/td>Not Available<\/td>\n<\/tr>\n
Matthew Collin, MD, PhD<\/td>Erdheim Chester Disease: Cancer, but not as we know it.<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Patient-reported outcomes in adults with Erdheim-Chester Disease: Early findings from the ECD Registry<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Novel Activating Mutations in CSF1R and Additional Receptor Tyrosine Kinases in Histiocytic Neoplasms<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Ran Weissman, M.Sc<\/td>The role of microRNAs in the Pathogenesis of Erdheim-Chester Disease and their Potential Use as Biomarkers for Diagnosis and Prognosis of the Disease<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>Slide deck not available<\/td>Imaging aspect of cardiac involvement in Erdheim-Chester disease: cardiac CT and MRI of 188 patients<\/a><\/td>\n<\/tr>\n
Gaurav Goyal, MD<\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>\n<\/tr>\n
Ana\u00efs Roeser, MD<\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Efficacy of Dual BRAF\/MAP2K1 Blockade in BRAF mutant Erdheim Chester Disease Patients<\/td>No Videos available<\/td>\n<\/tr>\n
Skand Shekhar, MD<\/td>Hypothyroidism in Erdheim-Chester Disease: Experience from the National Institutes of Health<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Gordon Ruan, MD<\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Panel Discussion: TOXICITY OF ECD THERAPIES<\/td>No Videos available<\/td>\n<\/tr>\n
Julio Hajdenberg, MD<\/td>Panel Discussion: COMPLEX CASE STUDIES<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Kathleen Brewer<\/td>ECDGA Announcements<\/a><\/td>No Videos available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Fotografien<\/h2>\n

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Medizinisches Symposium<\/h3>\n

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Medizinisches Meeting<\/h3>\n

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Gruppenbild des Orlando Medizinischen Symposiums 2018 Symposium ZusammenfassungAm j\u00e4hrlichen ECD Medical Symposium 2018 nahmen etwa 44 medizinische Fachkr\u00e4fte aus sechs L\u00e4ndern teil. Zehn m\u00fcndliche Abstracts wurden pr\u00e4sentiert, zusammen mit weiteren […]<\/p>\n","protected":false},"author":20,"featured_media":77379,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4822],"tags":[],"class_list":["post-102057","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medizinisches-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102057","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=102057"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/102057\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/77379"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=102057"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=102057"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=102057"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}