[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”15px||15px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/de\/kontaktieren-sie-uns\/” button_text=”Kontaktieren Sie uns” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row column_structure=”2_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”2_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”6px|||||” global_colors_info=”{}”]<\/p>\n
Die ECD Global Alliance veranstaltet jeden Monat virtuelle Online-Chats f\u00fcr alle Mitglieder der ECD Gemeinschaft. Dazu geh\u00f6ren Patienten, Betreuer\/Pflegekr\u00e4fte, Familienmitglieder, medizinisches Personal, Forscher usw. <\/p>\n
Wenn Sie sich bei der ECD Global Alliance registrieren, erhalten Sie eine E-Mail, in der jede f\u00fcr Sie relevante Chat-Sitzung angek\u00fcndigt wird. Wenn Sie sich noch nicht bei der Gruppe registriert haben, empfehlen wir Ihnen, dies hier zu<\/a> tun, um in Verbindung zu bleiben und informiert zu werden. <\/p>\n Die Chats sind offen f\u00fcr jedes Diskussionsthema, sofern es sinnvoll ist. Zu den h\u00e4ufig diskutierten Themen geh\u00f6ren ECD Diagnosen, Behandlungen, Tests, sachkundige \u00c4rzte, Symptome, Nebenwirkungen der Behandlung und manchmal auch nur freundliche Gespr\u00e4che \u00fcber angenehme Dinge im Leben der Teilnehmer. Die meisten, die an den Sitzungen teilnehmen, haben Kontakte gekn\u00fcpft und unterhalten sich auch au\u00dferhalb der Chat-Sitzungen. Die Treffen bieten auch eine Unterst\u00fctzungsstruktur f\u00fcr diejenigen, die daran interessiert sind, so viel wie m\u00f6glich \u00fcber ECD zu erfahren und sich gegenseitig zu unterst\u00fctzen. <\/a><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#35A4BB” custom_padding=”30px|30px|30px|30px|true|true” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”]<\/p>\n Der Verlust eines geliebten Menschen durch die Erdheim-Chester-Krankheit ist ein unglaublich schmerzhafter Weg, und niemand sollte ihn allein durchleben m\u00fcssen. Wir planen zwar keine Trauergespr\u00e4che mehr im Voraus, aber wir sind da, um Sie zu unterst\u00fctzen, wenn Sie es am meisten brauchen. Kontaktieren Sie unseren Patienten-Navigator f\u00fcr weitere Informationen.<\/p>\n [\/et_pb_text][et_pb_button button_url=”mailto:Belinda.Cobb@erdheim-chester.org” button_text=”Kontaktieren Sie uns” button_alignment=”center” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_color=”#35A4BB” button_bg_color=”#FFFFFF” button_border_radius=”8px” button_use_icon=”off” custom_padding=”10px||10px||true|false” custom_css_main_element=”width: 100%;” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”chat-sessions” _builder_version=”4.27.4″ _module_preset=”default” background_color=”#0A1640″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ 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[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/download-5.png” title_text=”Herunterladen (5)” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ 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[\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/australia-june.png” title_text=”Australien Juni” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image 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global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/German-Chat.png” title_text=”Deutscher Chat” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_video src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/Community-Chats.mp4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_video][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/06\/Housekeeping.png” title_text=”Hauswirtschaft” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n In der Vergangenheit hat die ECDGA getippte Live-Online-Chats f\u00fcr die Community durchgef\u00fchrt. Zusammenfassungen der fr\u00fcheren Chats wurden hier<\/a> zusammengestellt und archiviert. <\/p>\n Bitte lesen Sie unsere Richtlinien zur virtuellen Teilnahme<\/a>, bevor Sie an einem ECD Global Alliance Meeting oder Webinar teilnehmen.<\/p>\n HINWEIS: Pr\u00fcfen Sie Ihre Zeitzone hier: Zeitzonen-Konverter<\/a>.<\/p>\n Es wird kein<\/u> medizinisches Fachpersonal bei diesen Anrufen assistieren. Jeder Patient ist einzigartig und wir k\u00f6nnen hier keine medizinischen Ratschl\u00e4ge geben. Wir ermutigen Sie, alle Ideen mit \u00c4rzten zu teilen. Bitte lesen Sie unsere Richtlinien zur virtuellen Teilnahme.<\/a> <\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Online-Verbindung mit Ihrer Gemeinschaft Die ECD Global Alliance veranstaltet jeden Monat virtuelle Online-Chats f\u00fcr alle Mitglieder der ECD Gemeinschaft. Dazu geh\u00f6ren Patienten, Betreuer\/Pflegekr\u00e4fte, Familienmitglieder, medizinisches Personal, Forscher usw. Wenn Sie […]<\/p>\n","protected":false},"author":14,"featured_media":21078,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-58060","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages\/58060","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=58060"}],"version-history":[{"count":13,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages\/58060\/revisions"}],"predecessor-version":[{"id":134199,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages\/58060\/revisions\/134199"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/21078"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=58060"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}Kummer-Verbindung<\/h3>\n
Englischsprachige Gruppen<\/h2>\n
Internationale Gruppen<\/h2>\n
Kanadischer Community Chat<\/h3>\n
Chat para los que hablan espa\u00f1ol<\/h3>\n
Australischer und neuseel\u00e4ndischer Chat<\/h3>\n
Chat della comunit\u00e0 italiana<\/span><\/span><\/span><\/h3>\n
Chat frankophon<\/h3>\n
Deutschsprachiger Chat<\/h3>\n