{"id":52290,"date":"2015-09-09T15:22:45","date_gmt":"2015-09-09T20:22:45","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ressourcen\/"},"modified":"2026-03-24T10:14:04","modified_gmt":"2026-03-24T15:14:04","slug":"ressourcen","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/de\/ressourcen\/","title":{"rendered":"Ressourcen"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”15px||15px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/de\/kontaktieren-sie-uns\/” button_text=”Kontaktieren Sie uns” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”Zeile” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.27.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Ressourcen-Materialien<\/h2>\n

Diese Online-Ressourcen werden aufgelistet, um potenziell hilfreiche Ratschl\u00e4ge und Dienste zu bieten, die von Gesundheitsunternehmen, gemeinn\u00fctzigen Organisationen und anderen Interessenverb\u00e4nden angeboten werden.<\/p>\n

Die meisten dieser Dienste werden f\u00fcr Menschen angeboten, die in den USA leben. Wenn Sie weitere Ressourcen kennen, die f\u00fcr die USA oder andere L\u00e4nder aufgelistet werden sollten, kontaktieren Sie bitte die ECD Global Alliance. <\/p>\n

Die neuesten Expertenrichtlinien f\u00fcr die Pflege und Behandlung von ECD finden Sie unter Histiozyt\u00e4re Neoplasmen – Richtlinien Detail (nccn.org)<\/a>, wo Sie auf ‘NCCN Richtlinien’ klicken m\u00fcssen. Um auf das Dokument zugreifen zu k\u00f6nnen, m\u00fcssen Sie ein kostenloses Konto einrichten, aber das ist die M\u00fche wert. <\/p>\n

Dar\u00fcber hinaus bietet Survivorship Issues in Adult Patients with Histiocytic Neoplasms (\u00dcberlebensfragen bei erwachsenen Patienten mit histiozyt\u00e4ren Neoplasmen<\/a> ) eine Anleitung f\u00fcr den Umgang mit einigen der Komplikationen und Herausforderungen, denen jemand, der mit ECD lebt, begegnen kann.<\/p>\n

Medizinische ECD-Experten in unserer Gemeinschaft haben dazu beigetragen, zwei Arten von Brosch\u00fcren f\u00fcr allgemeine Bildungs- und Aufkl\u00e4rungszwecke zu erstellen. Die Patientenbrosch\u00fcre steht zur Verf\u00fcgung, um neuen Mitgliedern der Gemeinschaft zu helfen, die Grundlagen von ECD zu verstehen. Die medizinische Brosch\u00fcre kann an Ihr Behandlungsteam oder an medizinisches Fachpersonal weitergegeben werden. [\/et_pb_text][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/de\/broschuere-anfordern\/” button_text=”Brosch\u00fcre anfordern” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”rgba(200,200,200,0.3)” global_colors_info=”{}”][et_pb_row module_class=”resource-buttons” _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”||0px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_button button_url=”#medication” button_text=”Hilfe bei der Medikation” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}” button_bg_color__hover_enabled=”on|hover” button_bg_color__hover=”RGBA(255,255,255,0)” button_bg_enable_color__hover=”on”][\/et_pb_button][et_pb_button button_url=”#insurance” button_text=”Versicherung und finanzielle Unterst\u00fctzung” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#travel” button_text=”Reisebegleitung” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#partner” button_text=”Partner-Interessenvertretungen” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#general” button_text=”Allgemeine Ressourcen” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#depression” button_text=”Hilfe bei Depressionen und Angstzust\u00e4nden” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#apv” button_text=”APV-D Ressourcen” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”medication” module_class=”blog-grid” _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”10px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Hilfe bei der Medikation<\/h3>\n

Eine L\u00f6sung f\u00fcr Ihren Bedarf an verschreibungspflichtigen Medikamenten zu finden, kann eine Herausforderung sein. Die folgende Liste enth\u00e4lt Arzneimittelprogramme, die m\u00f6glicherweise dabei helfen k\u00f6nnen, Medikamente kosteng\u00fcnstig zu beziehen. Informationen zur Kosten\u00fcbernahme finden Sie auch auf unserer Webseite unter <\/span>Einlegen von Einspr\u00fcchen gegen den Zahler<\/a>.<\/span><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”296″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Siehe” custom_content_container=”off” show_filters=”off” filter_layout=”select” show_pagination=”off” items_width=”24%” module_class=”my-dfg” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” dpdfg_filters_active_text_color=”#C02E43″ custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”insurance” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Versicherung und finanzielle Unterst\u00fctzung<\/h3>\n

Finanzielle und medizinische Unterst\u00fctzung k\u00f6nnen Sie \u00fcber die folgenden Quellen erhalten.<\/span><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”297″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Siehe” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”travel” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Reisebegleitung<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”298″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Siehe” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”partner” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Partner-Interessenvertretungen<\/h3>\n

Die folgenden Selbsthilfegruppen befassen sich entweder mit Histiozytose-Erkrankungen oder mit seltenen Krankheiten im Allgemeinen und k\u00f6nnten Ihnen auf Ihrer Reise mit ECD behilflich sein. <\/span>[\/et_pb_text][dpdfg_filtergrid include_categories=”299″ post_number=”100″ order=”ASC” orderby=”title” thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Siehe” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”general” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Allgemeine Ressourcen<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”300″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Siehe” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”depression” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Hilfe bei Depressionen und Angstzust\u00e4nden<\/h3>\n

Wenn Sie das Gef\u00fchl haben, dass Sie sich selbst oder jemand anderem etwas antun k\u00f6nnten, rufen Sie an, schicken Sie eine SMS oder chatten Sie unter 988, um einen Krisenberater der Nationalen Hotline f\u00fcr Suizid- und Krisenpr\u00e4vention zu erreichen. 24\/7 Hilfe. 988 Lebenslinie<\/a><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”4828″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Siehe” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”apv” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

APV-D Ressourcen<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”4829″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Siehe” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Ressourcen-Materialien Diese Online-Ressourcen werden aufgelistet, um potenziell hilfreiche Ratschl\u00e4ge und Dienste zu bieten, die von Gesundheitsunternehmen, gemeinn\u00fctzigen Organisationen und anderen Interessenverb\u00e4nden angeboten werden. Die meisten dieser Dienste werden f\u00fcr Menschen […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-52290","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages\/52290","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=52290"}],"version-history":[{"count":17,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages\/52290\/revisions"}],"predecessor-version":[{"id":122298,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/pages\/52290\/revisions\/122298"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=52290"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}