{"id":95238,"global_id":"www.erdheim-chester.org\/de?id=95238","global_id_lineage":["www.erdheim-chester.org\/de?id=95238"],"author":"20","status":"publish","date":"2025-09-12 09:12:27","date_utc":"2025-09-12 14:12:27","modified":"2025-10-03 08:28:23","modified_utc":"2025-10-03 13:28:23","url":"https:\/\/www.erdheim-chester.org\/de\/event\/topic-survivorship-in-erdheim-chester-disease-incorporating-the-patient-voice\/","rest_url":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/tribe\/events\/v1\/events\/95238","title":"Topic: Survivorship in Erdheim-Chester Disease: Incorporating the patient voice","description":"<p><strong>Date:<\/strong>\u00a0September 23, 2025<br \/>\n<strong>Time:<\/strong>\u00a01:00 PM CT<\/p>\n<h3>Speaker: Gaurav Goyal, M.D.<br \/>\nUniversity of Alabama at Birmingham<\/h3>\n<p>Dr. Goyal was born and raised in India and completed his Hematology-Oncology Fellowship at the Mayo Clinic in Rochester, Minnesota. During his time at the Mayo Clinic, he developed a specialized focus on histiocytic disorders, including Erdheim-Chester Disease, Langerhans cell histiocytosis, and Rosai-Dorfman Disease. He conducted multiple studies on histiocytosis and played a key role in establishing the first multidisciplinary Histiocytosis Working Group, aimed at improving care for individuals affected by these rare disorders.<\/p>\n<p>Dr. Goyal subsequently joined the Hematology-Oncology Division at the University of Alabama at Birmingham (UAB), where he founded an Erdheim-Chester Disease care center. At UAB, he also launched the Histiocytic Disorder Survivor Study in partnership with the Erdheim-Chester Disease Global Alliance (ECDGA), further advancing research and support for patients with histiocytic\u00a0disorders.<\/p>\n<p>&nbsp;<\/p>\n<h4><a href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_bXelZbzKQrqT2_ermJIE0g\" target=\"_blank\" rel=\"noopener\">Register Here<\/a><\/h4>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8.jpeg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-91910\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8.jpeg\" alt=\"\" width=\"1080\" height=\"1080\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8.jpeg 1080w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8-980x980.jpeg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8-480x480.jpeg 480w\" 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