by Steven May Jr | Nov 25, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/11/export.mp4 Today, our friend Ziggy the Zebra is stepping up to help raise awareness and support for those living with Erdheim-Chester Disease (ECD) — a rare and challenging condition that needs more...
by publer | Nov 25, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to participate once again in Giving Tuesday and our End of Year Campaign—a time when our community comes together to create hope, connection, and progress for those affected by Erdheim-Chester Disease (ECD)....
by admin | Nov 5, 2025 | News
Last week, ECDGA President Diane Schriner and ECDGA Staff Member Jerome Henson represented the Erdheim-Chester Disease Global Alliance (ECDGA) at the American College of Rheumatology (ACR) Annual Conference, joined by Dr. Mitali Sen, a rheumatologist from the...
by admin | Oct 28, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to announce that Dr. Gaurav Goyal of the University of Alabama at Birmingham (UAB) recently met with ECDGA Board President Diane Schriner to begin planning the 2026 ECDGA Patient & Family Gathering and...
by admin | Oct 27, 2025 | News
A new study from Memorial Sloan Kettering Cancer Center highlights the promise of ulixertinib, a targeted therapy drug that blocks ERK, for treating certain forms of histiocytosis, including Erdheim-Chester Disease (ECD). Led by Dr. Eli Diamond, a member of the ECDGA...
by Steven May Jr | Sep 30, 2025 | News
This week, ECDGA President Diane Schriner, Board Member Paul Hendrie, MD, and team member Jerome Henson are proudly representing the Erdheim-Chester Disease Global Alliance at the 41st Annual Meeting of the Histiocyte Society! This international meeting brings...
