by Steven May Jr | Nov 28, 2025 | Social Posts
This year, your gift to the Erdheim-Chester Disease Global Alliance will go TWICE as far thanks to a generous $90,000 matching challenge. Your support fuels awareness, patient programs, and groundbreaking research. Stay tuned to learn how your impact can be...
by admin | Oct 29, 2025 | Social Posts
Living with Erdheim-Chester Disease—whether as a patient or caregiver—can bring overwhelming moments. Between doctor visits, uncertainty, and everyday life, it’s easy to feel the weight of it all. But you’re not alone. Here are a few gentle reminders and coping...
by Steven May Jr | Oct 1, 2025 | Social Posts
Left to right: Diane Schriner (ECDGA), Dr. Ronald Go (Mayo Clinic, Rochester), and Jerome Henson (ECDGA) discuss care strategies and research priorities. Dr. Go is a valued member of the ECDGA Medical Advisory Board.
by Steven May Jr | Oct 1, 2025 | Social Posts
Left to eight: Jerome Henson (ECDGA), Diane Schriner (ECDGA), Francesco Pegoraro, MD (Meyer Children’s University Hospital, Italy). Cross-border partnerships are essential in advancing the understanding of Erdheim-Chester Disease.
by Steven May Jr | Oct 1, 2025 | Social Posts
Diane Schriner at the ECDGA informational table, sharing details about the ECDGA’s support programs—including our growing network of ECD Referral Care Centers around the world.
by Steven May Jr | Oct 1, 2025 | Social Posts
Left to right: Jerome Henson (ECDGA), Laura Eurelings, MD (Erasmus MC University Medical Center), Diane Schriner (ECDGA), discussing the poster, “Anti-IL-6 Therapy in Erdheim-Chester Disease.” Conversations like these help drive forward the scientific understanding of...
