Erdheim-Chester Disease

ECD Global Alliance

Physicians with Erdheim-Chester Disease Knowledge/Experience

This section is provided to help patients and physicians find contact information about those physicians with some experience in diagnosing and/or treating Erdheim-Chester Disease (ECD).  If you are a physician and would like to see your contact information listed, or if you are a patient and would like us to contact your doctor for permission to include their information here, please email: 
support@erdheim-chester.org. 

The inclusion of a physician name and contact information here does not imply any type of endorsement of a particular physician.  Rather, this information is provided simply to help facilitate sharing of information and knowledge among patients and physicians.  Likewise, the exclusion of a physician name here also does not imply a lack of confidence in a particular physician.  Rather, it simply means either the physician has not been asked if their name can appear here or they have declined a request for permission to include their information. 

Cardiologists

F Mookadam MD

Mayo Clinic

     Consultant, Cardiovascular Diseases

     Professor, Mayo Clinic College of Medicine

     Medical Director, Mayo Clinic Anticoagulations Services

     Vice Chair, Expansion Services at Mayo Clinic in Arizona

     Associate Chair, Cardiovascular Outreach Expansion

13400 E. Shea Boulevard

Scottsdale, AZ 85259  USA

Telephone: (800) 446-2279

Fax: (480) 301-8018

E-mail:  mookadam.farouk@mayo.edu

András Palotás, MD, PhD
Asklepios-Med Bt. (private practice and research center)
H-6722 Szeged, Kossuth Lajos sgt. 23, Hungary
e-mail: palotas@asklepios-med.eu
web: www.asklepios-med.eu

Dermatologists

Martin Mempel, MD
Klinik und Poliklinik für Dermatologie und Allergologie am Biederstein
der TU München Biedersteiner Str. 29
D-80802 Munich, Germany
Email:  martin.mempel@lrz.tu-muenchen.de

Neurologists

Pramod Kumar Pal, MD, DM

Department of Neurology, National Institute of Mental Health and Neurosciences

Bangalore, Karnataka, India

E-mail: pal.pramod@rediffmail.com

Ettore Salsano, MD

U.O. Biochimica e Genetica – Neurologia VIII

Fondazione IRCCS, Istituto Neurologico “C. Besta”

Via Celoria 11

20133 Milano, Italy

Fax: (+39) 02 2394.2453

email: ettore.salsano@istituto-besta.it (contacts by e.mail are preferred).

Timothy Vollmer, MD (Medical Advisory Board Member)

Professor of Neurology

Medical Director-Rocky Mountain MS Center

Co-Director-Rocky Mountain MS Clinic Anschutz Medical Center

University of Colorado  Denver

Rm L15-5511, A01

12631 E 17th Ave

Mail Stop B185

Aurora, Co   80045  USA

Telephone:  720-848-2080

Fax:  720-848-2107

Mohammad Wasay, MD

Department of Medicine/Neurology
The Aga Khan University

Stadium Road, Karachi
74800, Pakistan

E-Mail:  mohammad.wasay@aku.edu

Nuclear Medicine

Majid Assadi, MD

Bushehr Research Center for Nuclear Medicine

The Persian Gulf Biomedical Sciences Institute

Boostan 19 Alley Imam Khomeini Street

Bushehr, Iran

Telephone: 0098-771-2580169

Fax: 0098-771-2541828

E-mail:  assadipoya@yahoo.com

PD Dr. med. Gerhard W. Goerres (ECD experience is limited, although paper published)

Vorsteher Institut für Medizinische Radiologie (IMR)

Solothurner Spitäler AG

Chefarzt

Bürgerspital Solothurn und Spital Grenchen

Schöngrünstr. 42

CH-4500 Solothurn, Switzerland

Telephone:  +41 (0)32 627 41 00

Direkt       032 627 40 30

Fax:          032 627 41 25

E-mail:  ggoerres_so@spital.ktso.ch

http://www.so-H.ch

Trifon Spyridonidis, MD
Nuclear Medicine Physician
Nuclear Medicine Dept.
University Hopsital of Patras
Greece
Telephone:  +30 2610 999210
email:  tspyr@med.upatras.gr

PD. Dr. med. Daniel Uebelhart, LA
(ECD experience is limited, although paper published)
Rheumaklinik und Institut für Physikalische Medizin + OsteoporoseZentrum USZ
Universitätsspital Zürich
Gloriastrasse 25, CH-8091 Zürich, Switzerland
Telephone: +41/ 44.255.29.12
Fax.: +41/ 44.255.43.88
E-Mail: daniel.uebelhart@usz.ch

David Wong, MD
Radiologist & Nuclear Medicine Specialist
Radiology Department
The Wesley Hospital
Chasely Street
Auchenflower 4066
AUSTRALIA
Telephone:  617 33719588
Fax:  617 33719432
E-mail:  dcwong@iprimus.com.au

Oncologists

Robert J. Arceci, MD, PhD (Medical Advisory Board Member)

King Fahd Professor of Pediatric Oncology

Professor of Pediatrics, Oncology and the Cellular and Molecular Medicine

Graduate Program

Kimmel Comprehensive Cancer Center at Johns Hopkins

Bunting-Blaustein Cancer Research Building

1650 Orleans Street, Room 207

Baltimore, MD 21231  USA

Telephone:  410-502-7519

Fax:  410-502-7223

Sasha Badzek, MD

Department of Oncology

University Hospital Center Zagreb

Kispaticeva 12, 10000 Zagreb, Croatia

Phone +385 91 504 8716

Fax +385 1 2388 583

e-mail: sbadzek@kbc-zagreb.hr

Eric D. Jacobsen, MD (treated multiple cases)

Dana-Farber Cancer Institute
Dana 1B30
44 Binney Street
Boston, MA 02115  USA.

TelePhone: 617-632-3470

e-mail:  eric_jacobsen@dfci.harvard.edu

Razelle Kurzrock, MD, FACP (Medical Advisory Board Member)
Professor of Medicine
Chair
Department of Investigational Cancer Therapeutics
(Phase I Clinical Trials Program
Division of Cancer Medicine
Anderson Clinical Faculty Chair for Cancer Treatment and Research
M. D. Anderson Cancer Center, Unit 455
P.O. Box 301402
Houston, TX 77030  USA
Phone: 713-794-1226; Fax: 713-563-0566

Paul Montgomery, MD
Medical Oncology
St. Luke's MSTI
100 E. Idaho St.
Boise, ID 83712  USA
Telephone: (208) 381-2711 
Fax: (208) 381-4035

Ophthalmologists

Ward Bijlsma, MD

Ophthalmologist, orbit, eyelids and lacrimal surgery

UMC Utrecht

Ophthalmology E03.136

PO Box 85500

3508 GA Utrecht, the Netherlands

Bita Esmaeli, MD, FACS
Associate Professor
Director, Ophthalmic Plastic & Reconstructive Surgery Fellowship Program
Section of Ophthalmology
Dept. of Head and Neck Surgery
M. D. Anderson Cancer Center
1515 Holcombe Blvd, Unit 441
Houston, Texas 77030  USA
Tel: 713-792-4457;  Fax: 713-794-4662
Email:  besmaeli@mdanderson.org

Anthony Hall, MD
Royal Melbourne Hospital and Eye Surgery Associates

Australia
Phone +61 3 8859-0600 

Esther M. Hoffmann, MD PhD

Consultant Ophthalmologist

Dept. of Ophthalmology

University of Mainz Glaucoma Research Theme Leader, clincial trials

Head of Eye Diagnostics Center (EDC Mainz)

Germany

E-mail:  ehoffman@uni-mainz.de

Telephone: + 49 1793984621

Kleanthis  Manousaridis, MD

University Clinic of Ophthalmology

University of Rostock

Doberaner Street 140

18055 Rostock

Germany

e-mail: klemanousaridis@kabelmail.de

Oral and Maxillofaical Radiologist

Sharad Sahai, MDS
DentoMaxillofacial Radiologist
DCA Imaging Research Centre
10 - B Kasturba Gandhi Marg
New Delhi - 110 001  India
Tel: +91 11 4370 7777
       +91 11 4370 7700
Email:  sharad.sahai@dcaimaging.org

Pathologists

Penny Barnes, MD
Division of Anatomical Pathology
Queen Elizabeth II Health Sciences Center
Halifax, Nova Scotia, Canada
Email:  Penny.Barnes@cdha.nshealth.ca

Alberto Cavazza, MD

Unità Operativa di Antomia Patologica
Ospedale S. Maria Nuova
Viale Risorgimento 80
42100 Reggio Emilia, Italy
E-mail:  alberto.cavazza@asmn.re.it

Thomas V. Colby, MD (Medical Advisory Board Member)
Mayo Clinic
Professor of Pathology
13400 E. Shea Boulevard
Scottsdale, AZ 85259  USA
Telephone: (800) 446-2279
Email:  colby.thomas@mayo.edu

Klaus F.Helm, MD

Dermatopathologist

Department of Dermatology

500 University Drive

Hershey Medical Center

Hershey, PA 17033  USA

E-mail:  Khelm@psu.edu

Ridas Juskevicius, MD
Division of Anatomical Pathology
Rm 205, Mackenzie Bldg.
Queen Elizabeth II Health Sciences Center
Halifax, Nova Scotia, Canada
Email:  ridas.juskevicius@cdha.nshealth.ca

Joseph F. Tomashefski, Jr., MD

Chairman, Department of Pathology

MetroHealth Medical Center

Professor of Pathology

Case Western Reserve University

School of Medicine

Telephone:  216/778-5181

Fax:  216/778-7112

Pulmonologists

Huck Chin Chew, MD

Pulmonary and Critical Care Physician

Emergency Physician

Singapore General Hospital

E-mail:  chew.huck.chin@singhealth.com.sg

Po Marn Kong, M.D.
Kong Clinic for Chest & Internal Medicine
#13-06 Mount Elizabeth medical Centre
Singapore 228510
Telephone: 65-68360928
Email: kongclinic@singnet.com.sg

Urologists

Erik P. Castle, MD
Mayo Clinic
Associate Professor of Urology
Urologic Oncology
Laparoscopic and Robotic Urology
Mayo Clinic
5779 East Mayo Blvd.
Phoenix, AZ 85054  USA
Telephone:  480-342-2805

E-mail: castle.erik@mayo.edu

Radiologists

Andrew M. Allmendinger, DO

Alan Krauthamer, MD

Department of Radiology

St. Vincent’s Catholic Medical Center,

170 West 12th Street

New York, New York 10011  USA

Telephone:  +1 212 604 2416;

Fax: +1 212 604 2929.

E-mails:
amallmendinger@gmail.com

avkhammer1@gmail.com

Aurélie Drier, MD

Department of Neuroradiology

Pitié-Salpêtrière Hospital

47-83 Bd de l'Hôpital

75013 Paris, France

E-mail:  aureliedrier@gmail.com

Archana Gupta, MD

Department of Radiodiagnosis

Sanjay Gandhi Postgraduate Institute of Medical Sciences

Rae Bareily Road

Lucknow 226014

Uttar Pradesh, India

E-mail:  agupta@sgpgi.ac.in

Rheumatologists

Harvinder S. Luthra, MD
Division of Rheumatology
John F. Finn Minnesota Arthritis
Foundation Professor
Professor of Medicine
200 First Street SW
Rochester, Minnesota 55905  USA
Secy 507-284-2060 Appts 507-284-4550
Fax 507-284-0564

 Surgeons

Dion Paridaens, MD PhD

Orbital Surgeon

The Rotterdam Eye Hospital

The Netherlands

E-mail:  D.Paridaens@oogziekenhuis.nl

George Donaldson

Neurosurgery

The London Clinic

20 Devonshire Place

London, England, W1G 6BW.

TEL :+44 02076167738

georgedon68@hotmail.co.uk

Peter Bullock

Neurosurgery

120 Harley Street

London, England, W1G 7JW

TEL: +44 02079356022

p.bullock@thelondonclinic.co.uk

If you are looking for additional information that is not listed here, please contact us so we can do our best to provide what is needed.

Last updated: August 7, 2010