Erdheim-Chester Disease

ECD Global Alliance

Physicians with Erdheim-Chester Disease Knowledge/Experience

This section is provided to help patients and physicians find contact information about those physicians with some experience in diagnosing and/or treating Erdheim-Chester Disease (ECD).  If you are a physician and would like to see your contact information listed, or if you are a patient and would like us to contact your doctor for permission to include their information here, please email: 
support@erdheim-chester.org. 

The inclusion of a physician name and contact information here does not imply any type of endorsement of a particular physician.  Rather, this information is provided simply to help facilitate sharing of information and knowledge among patients and physicians.  Likewise, the exclusion of a physician name here also does not imply a lack of confidence in a particular physician.  Rather, it simply means either the physician has not been asked if their name can appear here or they have declined a request for permission to include their information. 

Cardiologists

F Mookadam, MD
Mayo Clinic
     Consultant, Cardiovascular Diseases
     Professor, Mayo Clinic College of Medicine
     Medical Director, Mayo Clinic Anticoagulations Services
     Vice Chair, Expansion Services at Mayo Clinic in Arizona
     Associate Chair, Cardiovascular Outreach Expansion
13400 E. Shea Boulevard
Scottsdale, AZ 85259  USA
Telephone:  800-446-2279
Fax:  480-301-8018
e-mail:  mookadam.farouk@mayo.edu

András Palotás, MD, PhD
Asklepios-Med Bt. (private practice and research center)
H-6722 Szeged, Kossuth Lajos sgt. 23, HUNGARY
e-mail: palotas@asklepios-med.eu
web: www.asklepios-med.eu

Dermatologists

Martin Mempel, MD
Klinik und Poliklinik für Dermatologie und Allergologie am Biederstein
der TU München Biedersteiner Str. 29
D-80802 Munich, GERMANY
e-mail:  martin.mempel@lrz.tu-muenchen.de

Neurologists

Pramod Kumar Pal, MD, DM
Department of Neurology, National Institute of Mental Health and Neurosciences
Bangalore, Karnataka, INDIA
e-mail:  pal.pramod@rediffmail.com

Ettore Salsano, MD
U.O. Biochimica e Genetica – Neurologia VIII
Fondazione IRCCS, Istituto Neurologico “C. Besta”
Via Celoria 11
20133 Milano, ITALY
Fax:  (+39) 02 2394.2453
e-mail:  ettore.salsano@istituto-besta.it (contacts by e-mail are preferred).

Timothy Vollmer, MD (Medical Advisory Board Member)
Professor of Neurology
Medical Director-Rocky Mountain MS Center
Co-Director-Rocky Mountain MS Clinic Anschutz Medical Center
University of Colorado  Denver
Rm L15-5511, A01
12631 E 17th Ave
Mail Stop B185
Aurora, Co   80045  USA
Telephone:  720-848-2080
Fax:  720-848-2107

Mohammad Wasay, MD
Department of Medicine/Neurology
The Aga Khan University
Stadium Road, Karachi
74800, PAKISTAN
e-mail:  mohammad.wasay@aku.edu

Nuclear Medicine

Majid Assadi, MD
Bushehr Research Center for Nuclear Medicine
The Persian Gulf Biomedical Sciences Institute
Boostan 19 Alley Imam Khomeini Street
Bushehr, IRAN
Telephone:  0098-771-2580169
Fax:  0098-771-2541828
e-mail:  assadipoya@yahoo.com

PD Dr. med. Gerhard W. Goerres
Vorsteher Institut für Medizinische Radiologie (IMR)
Solothurner Spitäler AG
Chefarzt
Bürgerspital Solothurn und Spital Grenchen
Schöngrünstr. 42
CH-4500 Solothurn, SWITZERLAND
Telephone:  +41 (0)32 627 41 00
Direkt       032 627 40 30
Fax:          032 627 41 25
e-mail:  ggoerres_so@spital.ktso.ch
http://www.so-H.ch

Trifon Spyridonidis, MD
Nuclear Medicine Physician
Nuclear Medicine Dept.
University Hopsital of Patras
GREECE
Telephone:  +30 2610 999210
e-mail:  tspyr@med.upatras.gr

David Wong, MD
Radiologist & Nuclear Medicine Specialist
Radiology Department
The Wesley Hospital
Chasely Street
Auchenflower 4066
AUSTRALIA
Telephone:  617 33719588
Fax:  617 33719432
e-mail:  dcwong@iprimus.com.au

Oncologists

Carl Allen MD, PhD
Assistant Professor, Department of Pediatrics, Section of Hematology-Oncology
Baylor College of Medicine
Texas Children's Cancer Center
Feigin Center
1102 Bates St
Houston, TX 77030  USA
Telephone:  832-824-4312
Fax:  832-825-1206
e-mail:  ceallen@txch.org

(sees adult ECD patients)

Robert J. Arceci, MD, PhD (Medical Advisory Board Member)
King Fahd Professor of Pediatric Oncology
Professor of Pediatrics, Oncology and the Cellular and Molecular Medicine
Graduate Program
Kimmel Comprehensive Cancer Center at Johns Hopkins
Bunting-Blaustein Cancer Research Building
1650 Orleans Street, Room 207
Baltimore, MD 21231  USA
Telephone:  410-502-7519
Fax:  410-502-7223
(sees adult ECD patients)

Sasha Badzek, MD
Department of Oncology
University Hospital Center Zagreb
Kispaticeva 12, 10000 Zagreb, CROATIA
Telephone:  +385 91 504 8716
Fax:  +385 1 2388 583
e-mail:  sbadzek@kbc-zagreb.hr

Eric D. Jacobsen, MD (treated multiple cases)
Dana-Farber Cancer Institute
Dana 1B30
44 Binney Street
Boston, MA 02115  USA.
Telephone:  617-632-3470
e-mail:  eric_jacobsen@dfci.harvard.edu

Razelle Kurzrock, MD, FACP (Medical Advisory Board Member)
Professor of Medicine
Chair
Department of Investigational Cancer Therapeutics
(Phase I Clinical Trials Program
Division of Cancer Medicine
Anderson Clinical Faculty Chair for Cancer Treatment and Research
M. D. Anderson Cancer Center, Unit 455
P.O. Box 301402
Houston, TX 77030  USA
Telephone:  713-794-1226
Fax:  713-563-0566

Kenneth L. McClain, MD, PhD
Professor, Department of Pediatrics
Section of Hematology/Oncology
Baylor College of Medicine
6701 Fannin St., Ste. 1410
Houston, TX 77030  USA
Telephone:  832-822-4208
Fax: 832-825-1503
e-mail:  klmcclai@txch.org
(sees adult ECD patients)

Paul Montgomery, MD
Medical Oncology
St. Luke's MSTI
100 E. Idaho St.
Boise, ID 83712  USA
Telephone:  208-381-2711 
Fax:  208-381-4035

Ophthalmologists

Ward Bijlsma, MD
Ophthalmologist, orbit, eyelids and lacrimal surgery
UMC Utrecht
Ophthalmology E03.136
PO Box 85500
3508 GA Utrecht, The NETHERLANDS

Bita Esmaeli, MD, FACS
Associate Professor
Director, Ophthalmic Plastic & Reconstructive Surgery Fellowship Program
Section of Ophthalmology
Dept. of Head and Neck Surgery
M. D. Anderson Cancer Center
1515 Holcombe Blvd, Unit 441
Houston, Texas 77030  USA
Telphone:  713-792-4457
Fax:  713-794-4662
e-mail:  besmaeli@mdanderson.org

Anthony Hall, MD
Royal Melbourne Hospital and Eye Surgery Associates
AUSTRALIA
Telephone:  +61 3 8859-0600 

Esther M. Hoffmann, MD PhD
Consultant Ophthalmologist
Dept. of Ophthalmology
University of Mainz Glaucoma Research Theme Leader, clincial trials
Head of Eye Diagnostics Center (EDC Mainz)
GERMANY
Telephone:  + 49 1793984621
e-mail:  ehoffman@uni-mainz.de

Kleanthis  Manousaridis, MD
University Clinic of Ophthalmology
University of Rostock
Doberaner Street 140
18055 Rostock
GERMANY
e-mail:  klemanousaridis@kabelmail.de

Oral and Maxillofaical Radiologist

Sharad Sahai, MDS
DentoMaxillofacial Radiologist
DCA Imaging Research Centre
10 - B Kasturba Gandhi Marg
New Delhi - 110 001  INDIA
Tel: +91 11 4370 7777
       +91 11 4370 7700
e-mail:  sharad.sahai@dcaimaging.org

Pathologists

Timothy Craig Allen, MD, JD
Professor of Pathology
Chair, Department of Pathology
The University of Texas Health Science Center at Tyler
11937 U.S. Highway 271
Tyler, Texas 75708-3154  USA
Telephone:  903.877.7883
Fax:  903.877.7964
e-mail:  Timothy.Allen@uthct.edu

Penny Barnes, MD
Division of Anatomical Pathology
Queen Elizabeth II Health Sciences Center
Halifax, Nova Scotia, CANADA
e-mail:  Penny.Barnes@cdha.nshealth.ca

Alberto Cavazza, MD

Unità Operativa di Antomia Patologica
Ospedale S. Maria Nuova
Viale Risorgimento 80
42100 Reggio Emilia, ITALY
e-mail:  alberto.cavazza@asmn.re.it

Kung-Chao Chang, MD, PhD
Department of Pathology
College of Medicine
National Cheng Kung University
Tainan, TAIWAN
Telephone:  886-6-2353535 ext. 2636
e-mail:  changkc@mail.ncku.edu.tw

Thomas V. Colby, MD (Medical Advisory Board Member)
Mayo Clinic
Professor of Pathology
13400 E. Shea Boulevard
Scottsdale, AZ 85259  USA
Telephone:  800-446-2279
e-mail:  colby.thomas@mayo.edu

Klaus F.Helm, MD
Dermatopathologist
Department of Dermatology
500 University Drive
Hershey Medical Center
Hershey, PA 17033  USA
e-mail:  Khelm@psu.edu

Ronald Jaffe, MB.BCh
Department of Pathology
Children's Hospital of Pittsburgh
4401 Penn Avenue
Pittsburgh PA 15224 USA
e-mail:  Ronald.jaffe@chp.edu
Telephone:  412-692-5657

Joseph F. Tomashefski, Jr., MD
Chairman, Department of Pathology
MetroHealth Medical Center
Professor of Pathology
Case Western Reserve University
School of Medicine
10900 Euclid Ave.
Cleveland, OH  44106  USA
Telephone:  216/778-5181
Fax:  216/778-7112

Pulmonologists

Po Marn Kong, M.D.
Kong Clinic for Chest & Internal Medicine
#13-06 Mount Elizabeth medical Centre
SINGAPORE 228510
Telephone: 65-68360928
e-mail:  kongclinic@singnet.com.sg

Urologists

Erik P. Castle, MD
Mayo Clinic
Associate Professor of Urology
Urologic Oncology
Laparoscopic and Robotic Urology
Mayo Clinic
5779 East Mayo Blvd.
Phoenix, AZ 85054  USA
Telephone:  480-342-2805

Radiologists

Andrew M. Allmendinger, DO
Alan Krauthamer, MD
Department of Radiology
St. Vincent’s Catholic Medical Center,
170 West 12th Street
New York, New York 10011  USA
Telephone:  +1 212 604 2416;
Fax:  +1 212 604 2929.
e-mails:
amallmendinger@gmail.com
avkhammer1@gmail.com

Aurélie Drier, MD
Department of Neuroradiology
Pitié-Salpêtrière Hospital
47-83 Bd de l'Hôpital
75013 Paris, FRANCE
e-mail:  aureliedrier@gmail.com

Archana Gupta, MD
Department of Radiodiagnosis
Sanjay Gandhi Postgraduate Institute of Medical Sciences
Rae Bareily Road
Lucknow 226014
Uttar Pradesh, INDIA
e-mail:  agupta@sgpgi.ac.in

Rheumatologists

Harvinder S. Luthra, MD
Division of Rheumatology
John F. Finn Minnesota Arthritis
Foundation Professor
Professor of Medicine
200 First Street SW
Rochester, Minnesota 55905  USA
Secy:  507-284-2060
Appts  507-284-4550
Fax:  507-284-0564

 Surgeons

Alex Alfieri, MD
Oberarzt
Klinik und Poliklinik für Neurochirurgie
Martin-Luther Universität Halle-Wittenberg
Ernst-Grube Str. 40
D-06097 Halle (Saale)
GERMANY
e-mail:  alex.alfieri@medizin.uni-halle.de
e-mail:  alex.alfieri@uk-halle.de

Peter Bullock
Neurosurgery
120 Harley Street
London, ENGLAND, W1G 7JW
Telephone:  +44 02079356022
e-mail:  p.bullock@thelondonclinic.co.uk

George Donaldson
Neurosurgery
The London Clinic
20 Devonshire Place
London, ENGLAND, W1G 6BW.
Telephone:  +44 02076167738
e-mail:  georgedon68@hotmail.co.uk

Roberto Gazzeri, MD
Department of Neurosurgery
San Giovanni Addolorata Hospital
Rome, ITALY
e-mail:  robertogazzeri@gmail.com
Telephone:  +39 3386686149
www.chirurgiaspinale.it

Dion Paridaens, MD PhD
Orbital Surgeon
The Rotterdam Eye Hospital
The NETHERLANDS
e-mail:  D.Paridaens@oogziekenhuis.nl

If you are looking for additional information that is not listed here, please contact us so we can do our best to provide what is needed.

Last updated: September 17, 2011