ECD Global Alliance
Grants
Overview
The ECD Global Alliance funds research dedicated to learning more about Erdheim Chester Disease. In addition, the organization works with research teams and patients to facilitate communication between the two groups. The organization is interested in exploring the diagnosis, cause, and treatments of Erdheim-Chester Disease.
Requests for Proposals Now Being Accepted
The ECD Global Alliance is pleased to announce that one or more grants, up to a total value of $50,000, will be awarded on April 15, 2012. Research proposals were due December 31, 2011, for funding of research projects focused on the pathophysiology or treatment of Erdheim-Chester Disease.
The flyer used to announce the Request for Propoals can be found here.
Grant Applications
The grant submission process requires an application to be submitted according to a set of requirements that can be found here. The organization reserves the right to modify these guidelines, as it deems appropriate. However, the guidelines are provided here to help researchers in their planning. There are no plans in the near future to make any major modifications to these requirements.
Grant Review Process
The grant review process used by the ECD-GA is based on the process used by the National Institutes of Health. It relies on a Grant Application Review (GAR) Committee with members who are qualified researchers. Individuals of the committee first review each application independently. The GAR Committee then comes together as a group to share comments and discuss each application submitted. This committee provides the ECD Global Alliance Board of Directors a ranking order of the applications. The Board of Directors then makes the final funding decision and notifies the applicants. This process can be found here and the criteria by which applications are scored can be found here.
Previous Grants Awarded
In April 2010, only one month after receiving a 501(c)(3) designation, the organization announced it would be awarding a $50,000 ECD research grant and put out a Request for Proposals (RFP) to the international medical research community. In November 2010, the first grant recipient was chosen.
The ECD Global Alliance 2010 grant was awarded to Lorenzo Dagna, MD at San Raffaele Scientific Institute in Milano, Italy for the study entitled, "Hypoxia and inflammation in Erdheim-Chester disease microenvironment: insights on the pathogenesis and implications for therapy". The aim of this study is to better define the microenvironment inside ECD lesions and to evaluate the possibility of using specific drugs, already available for human usage, as a means to find new therapeutic options for the disease. The study runs from January 2011 until June 2012.
For More Information, Contact:
Kathy Brewer, President
ECD Global Alliance
P.O. Box 775
DeRidder, LA 70634 USA
1-337-515-6987
Last updated: December 25, 2011