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Blogs and eGroups

Blogs

Patients

Good Intentions                   http://walter327-goodintentions.blogspot.com/

Without a Manual                http://withoutamanual.blogspot.com/

ECD Project                        http://ecdproject.blogspot.com/

Minkey's Place                    http://www.minkeysplace.com/

Caregivers

A Journey Through The Maze of Rare Illness      
                                          http://ajourneythroughthemazeofrareillness.blogspot.com/

eGroups

Note: In order to enter the following facebook sites, you must first log on to your Facebook account.  If you don't have one, please go to www.facebook.com and set one up. 

Erdheim Chester Disease Alliance.  http://www.facebook.com/home.php?#/group.php?gid=50319134325

This site was created by a member of the ECD Global Alliance and is provided here for those interested. It is not maintained by the ECD Global Alliance, but can be used as a tool for connecting with others for anyone who might be interested. 

Defying a Frightening Diagnosis.  https://www.facebook.com/groups/241550579217632

This site was created by a member of the ECD Global Alliance and is meant to be a place of comfort for those who receive a fightening diagnosis. 

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Last updated: September 26, 2011