Blogs and eGroups
Blogs
Patients
Good Intentions http://walter327-goodintentions.blogspot.com/
Without a Manual http://withoutamanual.blogspot.com/
ECD Project http://ecdproject.blogspot.com/
Minkey's Place http://www.minkeysplace.com/
Caregivers
A
Journey Through The Maze of Rare Illness
http://ajourneythroughthemazeofrareillness.blogspot.com/
eGroups
Note: In order to enter the following facebook sites, you must first log on to your Facebook account. If you don't have one, please go to www.facebook.com and set one up.
Erdheim Chester Disease Alliance. http://www.facebook.com/home.php?#/group.php?gid=50319134325
This site was created by a member of the ECD Global Alliance and is provided here for those interested. It is not maintained by the ECD Global Alliance, but can be used as a tool for connecting with others for anyone who might be interested.
Defying a Frightening Diagnosis. https://www.facebook.com/groups/241550579217632
This site was created by a member of the ECD Global Alliance and is meant to be a place of comfort for those who receive a fightening diagnosis.
Last updated: September 26, 2011