Blogs and eGroups
Blogs
Patients
Good Intentions http://walter327-goodintentions.blogspot.com/
Without a Manual http://withoutamanual.blogspot.com/
ECD Project http://ecdproject.blogspot.com/
Caregivers
A
Journey Through The Maze of Rare Illness
http://ajourneythroughthemazeofrareillness.blogspot.com/
Live My Life for One Week http://livemylifeforoneweek.blogspot.com/
eGroups
Erdheim Chester Disease Alliance. http://www.facebook.com/home.php?#/group.php?gid=50319134325
This site was created by a member of the ECD Global Alliance and is provided here for those interested. It is not maintained by the ECD Global Alliance, but can be used as a tool for connecting with others for anyone who might be interested. Note: in order to enter this site, you must first log on to your Facebook account. If you don't have one, please go to www.facebook.com and set one up. You don't need to follow the link above, if you don't want to. Once you log on to Facebook, you can simply search for "Erdheim Chester Disease Alliance". The very first time, you should add this to your Facebook Groups. Then on subsequent times, once you enter Facebook, you can click on your Groups selection there and the group should be easily accessible.
Last updated: August 7, 2010